Important new research
Families invited to contribute
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Report: NSW health system & childhood dementia
Families’ experiences revealed
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Report reveals research inequity
Analysis uncovers concerning trends.
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Long Table Consultation Perth
Date set for important family consultation
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FACE it set for 18 SEPT
Global awareness push on Childhood Dementia Day
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Progress in 2023
Enormous strides made for children with dementia.
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Round table consultations
Meaningful consultation with families underway
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Media: 7.30 ABC childhood dementia report
Story features impacts and need for action
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Webinar: collective burden of childhood dementia
Viewing childhood dementia conditions together
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New research: extent of childhood dementia
Reveals causes, prevalence, mortality & more
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Media: TV, radio, online & global
Unprecedented media in September raises awareness.
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Awareness push breaks new ground
Worldwide push increases awareness of childhood dementia
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Webinar: Accessing Emerging Treatments
Recording of webinar held on 8 Sept 2023.
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Newborn screening news
The Australian Government has shared plans for newborn screening
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Grant opportunities
A list of some possibly lesser-known opportunities for research funding.
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Childhood dementia and the NDIS
Discussion paper on appointing specialist advisors
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Media: The Guardian 15 May
Comprehensive report on childhood dementia
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Media: A Current Affair May 8
Story on childhood dementia impacts and new research
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Childhood Dementia Symposium 2023 report
Report: Successful Symposium outcomes & feedback
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We dont fit
Report reveals inadequate support for children & families
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