Policymakers urged to act

Tuesday March 28, 2023: An event at Australia’s Parliament House helped increase policymakers’ understanding of childhood dementia and the urgent need for research and improved care for children and families.

Senator Marielle Smith and Dr Monique Ryan MP were joined by guest speaker, the Hon Ged Kearney MP, Assistant Minister for Health and Aged Care. Attendees also heard from Anna Pak Poy from the Rare Find Foundation, and Megan Maack from Childhood Dementia Initiative. 

The event was held while policymakers work on Australia’s next National Dementia Action Plan (NDAP). The NDAP will guide how Australia’s federal, state and territory governments support people with dementia over the next decade. 

“Australia has an opportunity to lead the world through meaningful inclusion and action for children with dementia in the National Dementia Action Plan,” said Megan Maack, Childhood Dementia Initiative CEO.

“An inclusive Action Plan will address the needs of all people with dementia regardless of their age. This includes children. The Action Plan must address the systemic discrimination currently experienced by children with dementia and their families,” added Megan.

“This is a critical time for children with dementia in Australia. We’re grateful to all who attended to learn more about the unique challenges children and families face.”

Childhood Dementia Initiative made a submission during public consultation on the Action Plan. A summary of that submission is also available.