National bodies recognise childhood dementia
10 June 2022
“We’re delighted. This is a real milestone. This means that Australia’s two biggest national dementia organisations are responding to childhood dementia and the needs of impacted families. This is the kind of systemic change that families really need.”
- Gail Hilton, Head of Programs at Childhood Dementia Initiative
Childhood dementia has been recognised by Australia’s peak body for people impacted by dementia. Dementia Australia, which represents Australians with dementia and those who care for them, now lists childhood dementia as a form of dementia that impacts the population. Previously, only dementias that impact adults were recognised by the organisation known for its helpline, information and support services.
This follows Dementia Support Australia’s recognition of childhood dementia. The organisation started to provide support specifically for children with dementia in mid 2021.
“We’re delighted. This is a real milestone. This means that Australia’s two biggest national dementia organisations are responding to childhood dementia and the needs of impacted families. This is the kind of systemic change that families really need.” says Gail Hilton, Head of Programs at Childhood Dementia Initiative.
Childhood Dementia Initiative expects to see an increasing number of organisations respond to childhood dementia as the condition starts to be more broadly understood.
“It’s not something anyone or any organisation can ignore once they’re aware of its severity, prevalence and neglect,” Hilton adds.
Information sessions
Childhood Dementia Initiative is rolling out a series of information sessions across Australia. The sessions are ideal for health and social care workers, researchers, parents and policymakers who would like key statistics and a broad understanding of the causes, symptoms and impacts of childhood dementia.
